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Data Justice & Sovereignty

How can data systems be structured to support bodily and community autonomy? 

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The articles and resources below get at this question from different angles. 

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Reclaiming Data Autonomy Zine

Publications

Friedman, L.M. (2025). Who is sovereign and how? Informing data sovereignty practice through analysis of autonomous health movements. communication+1, 12. https://openpublishing.library.umass.edu/cpo/article/id/2306/

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Lim, E., Lisker, M., Hess, L., Engeler, M., Friedman, L.M., Lingel, J., Ali, M. (2025). Abolish Privacy. First Monday.​ https://firstmonday.org/ojs/index.php/fm/article/view/13671 

Resources

​Friedman, L.M. (2024). Primer: Reclaiming Bodily Autonomy in Data

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Friedman, L.M. (2025). Zine: Reclaiming Bodily Autonomy in Data

Presentations and Workshops

“Understanding and Implementing Community Control of Health Data”

Emerging Engagement Scholars Workshop, October 2024

 

“Informing data sovereignty practice through analysis of autonomous health movements.”

Panel Presentation, Society for the Social Studies of Science, July 2024

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